Previous nystagmus lectures and talks
The first request to talk about nystagmus to teachers, parents of children with nystagmus and adults with nystagmus came in the late 1980s. Since then, we’ve learnt a lot more about the condition, so the content has changed a great deal. I still give single-handed presentations, but increasingly they’re all day workshops and two or three of us are involved, as the photo below shows.
(Photo: Debbie Wiggins of Cardiff University and Paul White of the Nystagmus Network at an RNIB nystagmus workshop in Liverpool)
Over the years, I’ve explained what it’s like to have nystagmus from Glasgow in the north to Plymouth in the south. Some VI support services ask me back on a regular basis to talk to the latest cohort of students.
”Your presentation was excellent. Thank you. I will probably arrange another in the future and target other parents” - VI support teacher, Gwent.
”Hearing from people with nystagmus was invaluable, but also, all the medical elements
were really useful too” – delegate at RNIB nystagmus training day, Birmingham 2009.
Among the audiences I’ve talked to are:
Teaching staff and parents
- RNIB training courses on nystagmus in Birmingham, Bristol, Cardiff, Liverpool and London
- Kent Association for the Blind (KAB)
- South Wales Association for Teachers of the Visually Impaired (SWATVI)
- Richmond VI Support Service and parents
- Gwent VI Support Service and parents
- Neath Port Talbot VI Support Service
- Croydon VI Support Service and parents
- Greenwich VI Service and parents
- Essex Special Needs Support Service
- Priory Common First School, Milton Keynes
- Hillingdon Service for Sensory and Physical Impairment
- Peterborough Visual Impairment Service and parents
- Suffolk County Council Education Department
- Gwent Association for the Blind
”The personal accounts were invaluable. The medical background was very interesting and it will be useful to have the ‘laymen’ knowledge behind advice for parents” – delegate Birmingham workshop.
Medical
- International Nystagmus Research Workshop, Abingdon, UK, September 2005
- Leicester ophthalmology department
- Swansea Singleton Hospital Ophthalmology Department
- Wirral Hospital, Arrowe Park Hospital Eye Department
- Southampton University Hospital medical training
- Great Ormond Street Hospital, London
Probably the most memorable feedback came from a mum, 15 years after a talk I gave in Peterborough. “You changed my life. My daughter was five then and I had little idea about how nystagmus affected her. I went home and started to do things differently.”
Other
- Annual lecture to 3rd year optometry students, Cardiff University
- Plymouth University Psychology Department
- Albinism Fellowship, Glasgow and York
- Rehabilitation workers, Llanelli
For more information about nystagmus training, contact John Sanders at John Sanders or phone 029 2045 4242
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